All Star and an inspiration. Read their story below:
"We adopted Estie with a unknown diagnosis. When she was 7 months old, her lungs collapsed. We were told by the doctors that she might have Spinal Muscular Atrophy (SMA), and that we should think of taking her off the ventilator at some point. We were told that she might live until she was 2, but with a ventilator she could possibly live until a teenager, however, what kind of quality of life would that be?
I quickly did my research on SMA and found there are 3 choices:
1) do nothing and let nature take its course
2) non-invasive ventilation (a mask instead of tracheostomy and very intensive therapy
3) tracheostomy with ventilation
|Estie (middle) with sisters Sadie and Grace|
She came home after 4 months in the hospital and has only had a few hospital stays since. After the initial poor prognosis, she proved the doctors wrong and performed in a dance recital at the age of 10 years. She is now 11 years old, attends school, plays tee-ball & basketball, does dance and loves to enter pageants. Oh yes she still does not have a diagnosis, but they have kind of figured by now it is not SMA.
Lori, I diagnose your daughter with All Starism. Thanks for sharing! ~ Cas
P.S. We'd love to hear other All Star stories. Please submit your story HERE. Thanks!