My son with autism had a brain infection that caused his brain to be pushed over the midline. He had surgery on October 14. As I write this, he is in the hospital expecting to be released sometime this coming week! He has a long road to recovery, including long term antibiotics, physical therapy, and a helmet. Then, another surgery to put the bone back into his head. Two days after surgery, he was eating, building Legos, coloring pictures and writing his name. He is a superstar for sure!
Andrew was diagnosed at 3 ( he is now 22). He received awesome early intervention and progressed through school very well. When he is better he will go back to his special Olympics bowling and his job at the video store. He lives with us, loves his family and all kinds of Star Wars and superheroes. He also loves Comic-Con!
We received much support from our school system, but mostly from our family and our church family. We also know without a doubt that God created Andrew perfectly and that his purpose on this earth is very valuable. We have met more people, learned more, loved more and been involved more because of him. My career came about because of him- I work as a Parent Mentor for parents of special needs kids-one of the requirements for the job was to be a parent of a child with special needs!
Many times our struggle comes from our own attitudes about Andrew and autism. When I get down or discouraged or frustrated with him or the services, or lack thereof, that is when I struggle, feel sad or angry. I am far from a perfect parent! Just ask my other kids! But having Andrew has made me a thoughtful parent, more of one that thinks through why I am doing something instead of jumping in right away. I also have learned to trust my instincts.
I will say, I am married to the most wonderful man. We have shared this journey from the beginning and his wisdom, encouragement and love for me, gives me what I need to be Andrews mom.
I also want to say something about my other kids. Andrew has a sister and two brothers. They are amazing people because of growing up in the disability culture that they did. They are accepting, caring and compassionate people.
This whole life, journey or whatever you want to call it, is dependent on our faith in Jesus Christ. Our life is focused on living the way he would want us to and caring for Andrew is Gods gift to us.
Andrew definitely is an All Star, and we would love to be kept updated on his progress. ~ Cas
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